Thursday, October 27, 2011

The Love in Hospice

November is designated as National Hospice Month and here at HFA we regularly hear from family members about what hospice has meant to them and their loved ones. People tell us about the dedication shown by the hospice nurse, volunteer, social worker or other member of their loved one’s caregiving team.

Many of us at HFA were particularly touched by a piece in the New York Times’ Modern Love column, written by a Minnesota judge who performed an ‘emergency wedding’ for a hospice patient at the behest of his hospice social worker.
THE call came around 3:30 p.m. on a sultry Minnesota day. The hospice social worker, Cheryl, explained the situation in a rush. She had tried 15 judges, and all were either in court or otherwise unavailable. By chance, she had reached me directly.

She said she needed a judge to perform an emergency wedding.

Believe it or not, this was not my first such request of the week. In fact, I often receive these requests, usually involving the need to get a waiver to avoid the required five-day waiting period. Sometimes I am sympathetic, as when the request is spurred by a sudden deployment to Iraq or Afghanistan.

But generally I don’t like to reward those who leave matters like the arrangement of a wedding until the day they want it to happen. My son, Cole, proposed on Valentine’s Day this year for a wedding 18 months later, in August 2012. I was tired of the seemingly endless series of calls from people with ridiculous, impulsive requests.

I leaned back in my desk chair and, as I do when I’m tired, pulled on my right earlobe and scratched my head, the right forefront where my hairline is beginning to retreat. I half-listened as I wondered what to do about the post-trial motions for the case I’d just heard, and the detective waiting outside my chambers for me to sign a search warrant, and the sheaf of emergency orders on my desk in unrelated cases that typically accumulate during a lengthy trial.

But Cheryl begged; she practically yanked my bleeding heart right out of my chest. She explained that she was a hospice social worker for Thomas, 77, who had recently been discharged from the medical center hospice unit so he could die at home. He was conscious and lucid but likely to die at any moment. He could no longer talk and communicated entirely though hand squeezes.

His dying wish was to marry Donna, his life partner of 38 years. She was 57. They had talked about marriage over the years but had never gotten around to a wedding. They had even gone so far as to fill out the application from the downtown wedding license center.
Their wedding was performed, with the judge officiating over the phone, witnessed by the hospice chaplain and arranged by the dedicated hospice social worker, Cheryl. The groom died later that evening.

Tuesday, October 25, 2011

Special Holiday Offers from HFA

Give the gift of sharing knowledge and support with two special offers from Hospice Foundation of America:

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Save 20%Price:
$20 $16 (Packs of 50)
$30 $24 (Packs of 100)
Winter Holidays Special Issue of Journeys!
use coupon code wh2011
Offer Expires: December 10, 2011

This new, expanded special edition of Journeys provides additional support to your clients during the holidays. The new, 6-page Winter Holidays Special Issue is packaged in quantities of 50 and 100.

Interesting and informative articles include:

  • The 3 C's of Coping
  • Holiday Survival Strategies
  • Old and New Rituals for the Holiday Season
  • Question and Answer Section
  • A personal story of grief during the holidays

Don't miss this opportunity to support your clients with the updated and expanded version of one of HFA's all-time best-selling resources. Use coupon code wh2011 when placing your order.

Click here to order now. Orders of 100 will also receive a free mp3 download of HFA's "Grief, Holidays, and Family Dynamics" webinar. One continuing education credit is available for a range of professions.

Save 15%Price:$100 $85Living with Grief® "Spirituality and End-of-Life Care"
use coupon code HYSP
Offer Expires: December 31, 2011

Available on DVD, this 2.5 hour program discusses the differences and relationship between spirituality and religion, while exploring spirituality during illness, death and grief; spiritual assessment and empowerment, and life review. Best of all, you can schedule this program when it best suits your audience (staff, faith leaders, community at large).

Continuing education credit is available for social workers, nurses, counselors and more. For more information see www.hospicefoundation.org/educate.

To receive the discount, use the code: HYSP.

Discount Instructions: Simply go to our registration site https://register.hospicefoundation.org/, select the Spirituality DVD program, and enter your discount code at checkout.

Monday, October 24, 2011

Help HFA Shape the Next Living with Grief® Program

CALL for CASES:



We're looking for interesting dilemmas for possible inclusion in the next Living with Grief® program, "End-of-Life Ethics."


Cases that have gone to an Ethics Committee would certainly be of interest; however, we'd also like to hear about issues that didn't rise to the level of an Ethics Committee review but were perplexing all the same. If you have a case from which there is something to be noted or learned by your professional colleagues please let us know! Email us: permissions@hospicefoundation.org.

Wednesday, October 19, 2011

Become an HFA Partner!

Become an HFA PartnerGet Recognized and List Your Organization Today! Hospice Foundation of America will include a special Recognition Section in our annual printed Program Guide, for organizations that support HFA and HFA's educational programs. Become an HFA Partner for only $100.
The End-of-Life Ethics educational program will be available for a year after its start date, increasing the number of times the Program Guide will be distributed, and the number of times that your organizational listing will be displayed. HFA’s 2012 program will be available via DVD only, beginning April 19, 2012.

  • An organizational listing is a great opportunity to get your organization recognized for a full year!

  • You can list your organization name, address, phone number, website, and a brief listing (25 words) of the services that you provide.

  • HFA’s Program Guide will be distributed to over 45,000+ professionals, nationwide – including physicians, nurses, social workers, clergy, care givers, and more.

Learn more now, or view the 2011 Program to see how your listing will appear.
To become an HFA Partner and list your organization, please e-mail kbaker@hospicefoundation.org or return this form to HFA. The deadline to submit is January 13, 2012.




End-of-Life Ethics
available beginning April 19, 2012
End-of-Life Ethics
Available only on DVD, the program examines, using a case study approach, the ethical issues and dilemmas that emerge at the end-of-life. Ethical decisions at the end of life provide a point where all the factors that influence end-of-life care such as finances, laws, values, culture, and technology converge. The decisions that are made at the end-of-life affect not only the way that the person dies, but also the ways that survivors face the loss. These decisions may influence staff – affecting morale and turnover consequently directly influencing patient care as well as families struggling with grief. This program explores ethical dilemmas that are likely to arise at the end-of-life, the principles of ethical decision-making and the effects of these decisions on staff and families. Case studies will be used to illustrate ethical issues that will be addressed by the program panel.

Tuesday, October 11, 2011

On Total Pain

On September 29 and October 6, Phil Carpenter, HFA Program Officer and Bereavement Specialist, led educational sessions for The Washington Home and Community Hospices.

He and Dr. Cindy Williams co-presented an hour-long session both days on the topic of Total Pain, which seeks to assess and treat pain as it is experienced physically, psychologically, socially and spiritually. And, more specifically, the presenters focused on how each discipline plays a role in the management of this pain.

The audience for these sessions consisted of 65-70 general office staff and clinical hospice workers.

Later in the day Phil led a one-hour workshop dealing with Spiritual Pain and Religious Pain, examining the similarities and differences. Using a case-study approach these smaller groups of 10 – 15 social workers, chaplains, bereavement counselors, and nurses gained an understanding of the definitions of Spiritual Pain and Religious Pain.

With this new information, the groups discussed how these issues affect the patients and families in their care, and how hospice professionals can ask questions and create an open and safe environment for discussion of these concerns.

If your organization is ever in need of a speaker or panelist, please contact HFA to see how we can help.

Friday, October 7, 2011

Celebrate World Hospice and Palliative Care Day

World Hospice and Palliative Care Day is Saturday, October 8th. The theme for World Day 2011 is "many diseases, many lives, many voices - palliative care for non-communicable conditions". The theme will focus on how people living with conditions which are not infectious can benefit from palliative care. Non-communicable diseases (NCDs), which include cardiovascular diseases, cancers, chronic respiratory conditions and diabetes, make up 60% of death worldwide. The majority of these deaths occur in low and middle income countries, where palliative care is often not available.

World Hospice and Palliative Care Day is a unified day of action to celebrate and support hospice and palliative care around the world.

For more information, go to www.worldday.org

Thursday, October 6, 2011

Beyond Kübler-Ross Companion Book

BKR Book CoverBeyond Kübler-Ross: New Perspectives on Death, Dying and GriefHospice Foundation of America
Edited by Kenneth J. Doka & Amy S. Tucci
Beyond Kübler-Ross: New Perspectives on Death, Dying and Grief looks closely at the pioneering legacy of the work of Kübler-Ross and discusses how professional understanding of dying and grief has progressed and developed. Readers will find spirited discourse on the most current issues surrounding the question of how people grieve and how professionals can best support them, in chapters and tools that will augment and even challenge their work.
From the Book
Like any important theorist who preceded us, Elisabeth Kübler-Ross helped advance our thinking in this field and sparked important efforts to find good in those who are coping with dying and in ourselves. She offered us constructive lessons; it is our responsibility to appreciate both the strengths and the limitations of what she wrote. That will not be accomplished by merely freezing our understandings of her work in an often simplistic reading of a theoretical model set forth in 1969. Turning to the future, we have opportunities to move forward in our thinking about coping with dying and helping those who are coping with dying.
--Charles A. Corr, Strengths and Limitations of the Stage Theory Proposed by Elisabeth Kübler-RossOrder Today (order box of 20 here) 

HFA's Fall Educational Program Beyond Kübler-Ross: New Perspectives on Death, Dying, and Grief (available beginning November 10, 2011) Register Now
(available beginning November 10, 2011)